I was going to try and be clever and post this picture, and the title of this post was going to be,
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"Notice Anything About This Picture?
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and then I was going to point out that they don't have couches like this in the NICU, or anywhere else in the hospital, for that matter....
...because, the couches in the hospital are made of that kind of cold, vinyl-like material...and, the couches at the hospital are much cleaner than this couch, too...
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...and then, I was going to say that there is good reason that this particular stained couch is in the picture because...
After 46 Days in the NICU, at the age of 1 month, 2 weeks and 1 day old (technically, it would have been 36 weeks and 2 days gestation if I were still pregnant with him)
After 46 Days in the NICU, at the age of 1 month, 2 weeks and 1 day old (technically, it would have been 36 weeks and 2 days gestation if I were still pregnant with him)
Our little John came home.
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John came home on the evening of Monday July 13th, 2009. When he was released from the hospital he came home with several types of medication, and apnea monitor and was still on oxygen. His first night home his apnea monitor alarmed while I was burping him to indicate that he was not breathing. Thank goodness I was holding him when it alarmed because I was able to look at him and see that he was just holding his breath for a few seconds. (Perhaps, he held his breath because I was burping him?- the monitor is very sensitive) I cannot imagine the terror I would have felt if I heard the apnea monitor alarm and I had to run to his crib to see what caused it.
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I told Mike that if that apnea monitor ever alarmed again, I was going to need oxygen, myself.
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...and maybe the use of a defibrillator.
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When I told Mike that he smiled and called out, "CLEAR!" as he pretended to put defibrillator paddles to his chest. He's hilarious, isn't he?
Well, it was a great 4 days home for our sweet John Daniel, but unfortunately he had to be hospitalized again yesterday morning because his lungs had filled with fluid and he had to strain to catch his breath even with the help of the oxygen. It was so scary to see his little chest contract so deeply into his body that it looked like it was going to touch his spine. I felt so helpless.
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The comforting news is for this hospital visit either Mike or I get to, "room in" with our little man and be in charge of all of his care (feeding, diapering, burping, holding, cooing at, etc.) and the doctors and nurses manage all of the medical aspects of his care. (Medicine, oxygen, X-rays, ultra-sounds, etc.)
All things considered, John is doing well and we hope to be able to bring him home again, soon. There is some question that he has a "sub ependymal hemorrhage" in his brain. The doctor assured us that small, "bleeds" on the brain are very common for preemies and that it is entirely possible that the bleeding will resolve on its own. I told the doctor that he cannot use the word, "hemorrhage" in my presence and expect me to keep a cool head. That's when he used the term, bleed" as opposed to, "hemorrhage". Nice try, Doc.
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So, again...all of these complications are common for preemies and John is getting excellent medical care. It is very possible that he will not have any long term effects from them and if he does...we will handle them as they present themselves. John has had multiple priesthood blessings and I am so grateful for how we have been blessed through them and through prayers. This whole experience has taught me so much about the Atonement. I know that our Heavenly Father knows our little John and that our Savior Jesus Christ has felt the pain of his physical infirmities. That knowledge has sustained me so much.
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So, I am off for my shift at the hospital, now. Mike spent last night bonding with our youngest man and I am so excited for my turn.
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This picture was taken by Adam when John was still in the NICU. Adam asked if he could take John's picture and when he did I noticed he had his hand in front of the camera lens. When I asked him what he was doing he said, "I'm taking a picture of my 'thumbs up' for baby John!"
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I really like this picture. Baby John, your big brothers, and parents are positively ga ga over you. Come home to us soon, little man.
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This picture was taken by Adam when John was still in the NICU. Adam asked if he could take John's picture and when he did I noticed he had his hand in front of the camera lens. When I asked him what he was doing he said, "I'm taking a picture of my 'thumbs up' for baby John!".
I really like this picture. Baby John, your big brothers, and parents are positively ga ga over you. Come home to us soon, little man.
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33 comments:
I got the chills reading this, it was so sweet. So glad Little John got to come home and hope he's back home soon!
Clear! It's your senses of humor that are going to carry you and Mike through this. Well, that and blessings and family and all. But what a blessing your spunky sense of humor is!
Stay strong. Proud of you!
I hope you can bring him home permanently very soon. I'm sure he is where he needs to be for the time being. It is cool that you get to room in with him and take care of your sweet boy. I love the thumbs up picture and am sending you hugs and best wishes for the coming days.
He really is such a beautiful baby boy.
I can't imagine the scare when that machine went off.
Take care, friend!!!
I can't believe it's already been over a month. And I'm glad he's back in the hospital, it's scary when they have all those monitors.
He's looking so much bigger already. I may need a few more pictures to accurately judge. :)
Hope you get some decent sleep on your vinyl hospital couch and that John gets stronger everyday.
Keep the faith. Everybody's praying for you guys.
Crazy-you are doing such a great job. hang in there. i will call you during your shift tomorrow...
He already looks so big in that last picture! What a sweet baby boy. I hope all is going well. I love you, sister.
Look at that little guy! He is growing and looking so good. Lauren, I totally know exactly how it feels to bring a baby home with all the goodies. The oxygen, that darn apnea monitor! That thing was a huge nightmare. We stuffed blankets inside the case to muffle it because it was so screachin' loud. Ours went off all the time, 'til we realized that Andrew's heating pad was making it go off. He had to have the heating pad because he couldn't keep his body temp. up. So since the heating pad was more important, the monitor had to go. I wasn't sorry!!
It's really nice to know that the things he's going through are common. Let that comfort you! You guys are in my prayers. What a journey this is, and what an amazing blessing Little John is. Love you guys!
I've got every part of my body that is possible to cross crossed that he will thrive and be home soon. I'm sure the Marshman house just feels incomplete without him and his sweet spirit. You're a trooper and so strong, nothin' but love coming your way.
I was so happy so see him home on the couch! But then I was so sad to hear he had to go back to the hospital. Clearly that is where he needs to be and it is only temporary.
My neice was born at 28 weeks. That was almost 11 years ago! She is healthy, strong and beautiful with no effects of her very stressful beginning. She was in the hospital for over two months which may seem like forever to you now, but in the grand scheme of things is nothing. Hang in there my sweet friend. "This too shall pass..." that is what always comes into my mind when the adoption drama overwhelms me. XOXO
LOVE the picture Adam took! That is so cute! You are so strong! I admire the way you and Mike are handling all this! It is good to have humor!
Little John is just so sweet and adorable!
Oh my gosh. He is 100% adorable.
I am glad to hear John has been home. I think about you and know that our prayers are with your little bundle. Hope he comes home for good very soon.
i love how l'il j-dawg is looking at the thumb and the camera like "seriously. get that thing out of my face or i'm gonna bust you up."
and so it begins.
he really is starting to look big now!!!! he is still absolutely adourable!! keep us up to date! (sullivan saw a picture of evan today and I said whos that and he said... "uh, my buddy!" yes, and what's your buddies name? "uh, that;s my buddy..." You mean Evan? "yes, Evan!"
Such a sweet post! I love you guys! Please call me if you need ANYTHING! Mike talked to me today about watching the boys. I can do it whenever. Love you Lauren!
I'm so glad John got to come home. I hope that all complications resolve soon. I'm still praying for little John and your family.
You guys have been through so much! I have to say though, your posts are a joy to read. You brighten my day with your writing and descriptions, even though things are HARD for you right now. Hang in there and know that I am praying for you!
BTW-John is soooo adorable, what a sweetie. No wonder you are all over the moon for him.
Oh my goodness! So much going on with your family. So exciting and scary all in the same breath. I hope little John can come home soon for good!!! Hang in there mama!
Big hugs! I'm sure it's a comfort to be there to hold and take care of him yourself. I'll be sure to keep you all and baby John in my prayers :D
i can't imagine how my heart would drop into my stomach to hear that little monitor go off! it's a good thing you two have such a great sense of humor! "clear", too funny! i hope that when you bring him home it will be for an extended stay....like forever, well at least til he is grown and ready to leave home and be on his own! hang in there!
Adam's thumb's up for baby John is awesome! What an adventure you are having with him. Hope is hemorrhage, I mean bleed, is controlled soon and you can have him home FOR GOOD. Hang in there, Lauren!
oh Lauren - my heart just goes out to you! You are such a trooper! That is so hard to have him home and then leave again. I pray for you often.
P.S. I love the thumbs up pic!
What a precious little boy. I hope you and he are doing better by the time you see this comment. We have you in our prayers!
He may not win any wrestling matches with his brothers quite yet, but that is one strong dude.
I hope he grows stronger and stronger so he can home with you soon!
You have the sweetest kids! They are so loving and are such great big brothers! They treated Asher like such a little brother! John has a lot of love going his way! I'm sure he can't wait to be back home with his awesome family!
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Lauren, that boy is TOO sweet. I hope he's doing well. You and your family are continually in our prayers. I can't imagine how draining this has all been. I'm sorry. Please let us know if there's anything we can do! Much MUCH love!
He's looking so non-preemie-ish! So handsome!
(Since I'm just getting home from my trip and checking blogs, this is 10 days late, and now I already need another update! How's he doing on July 27?)
I have been thinking of you so much! You are amazing and your strength is inspiring! I miss you and your family! I'm sending my love and thoughts and prayers!!
It sounds like your family has had a tough couple of months. Thank goodness for modern medicine, and for your amazing sense of humor. He's adorable!
This was soooooooo sweet. And clever. And funny. You really have such an amazing attitude and humor about everything. Here is for hoping little John will be home to stay...soon!
OK- this little baby is giving you more problems than a teenager would. Tell Evan to start talking back and cursing or something, and switch with little John!
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